Written by Dee Holli — Updated on September 24, 2018
This is an excellent article with great questions to ask your oncologist after being diagnosed with breast cancer. Hearing “This is most likely breast cancer” were some of the worst words a doctor has ever said to me. My surgeon took one look at the ultrasound machine screen and uttered those words to my husband and me. I was numb and barely heard anything he said after that. I had questions, but my mind was reeling from what I was sure was true but had just had confirmed by a specialist. When I saw my surgeon a few days later for my first biopsy, I did ask him a few of these questions, and he answered what applied to his part of my treatment, and then the oncologist he referred me to answered the rest. Talk to your doctor; if you don’t like how they treat you, find another doctor, this is a long journey, and you must trust and respect the doctors working with you to save your life.
Not sure where to begin when it comes to asking your doctor about your breast cancer diagnosis? These 20 questions are a good place to start:
Now that I’ve been diagnosed with breast cancer, are there other imaging tests I will need?
Ask your oncologist whether you will need other imaging tests to determine whether or not the tumor has spread to lymph nodes or other parts of your body.
What type of breast cancer do I have, where is it located, and what does this mean for my outlook?
Ask your oncologist, based on your biopsy, what subtype of breast cancer you have, where it is located in the breast, and what that means for your treatment plan and your outlook after treatment.
How far has my tumor spread?
Understanding what stage of breast cancer you have is important. Ask your doctor to explain the stage to you and find out where else besides the breast any tumors are located.
According to the National Cancer InstituteTrusted Source, the stage of your breast cancer is based on the size of the tumor, whether the cancer has spread to any lymph nodes, and whether the cancer has spread to other areas in the body.
What is the tumor grade?
Particular characteristics of breast cancer cells affect how aggressive your tumor is. These include the amount of tumor cells that are reproducing, and how abnormal the tumor cells appear when examined under a microscope.
The higher the grade, the less the cancer cells resemble normal breast cells. The grade of your tumor can influence your outlook and treatment plan.
Is my cancer hormone receptor-positive or hormone receptor-negative?
Ask your doctor whether your cancer has receptors. These are molecules on the cell surface that bind to hormones in the body that can stimulate the tumor to grow.
Specifically ask whether your cancer is estrogen receptor-positive or receptor-negative, or progesterone receptor-positive or receptor-negative. The answer will determine whether or not you can use medicines that block the effect of hormones to treat your breast cancer.
If your biopsy didn’t include testing for hormone receptors, ask your doctor to have these tests performed on the biopsy specimen.
Do my cancer cells have other receptors on the surface that can affect my treatment?
Some breast cancer cells have receptors or molecules on the surface that can bind to other proteins in the body. These can stimulate the tumor to grow.
For example, the American Cancer Society (ACS) recommends that all patients with invasive breast cancer be tested to see if their tumor cells contain high levels of the HER2 protein receptor. This is important because there are additional treatment options for HER2-positive breast cancers.
Ask your oncologist if your cancer is HER2-positive. And if you haven’t been tested for HER2 protein receptors, ask your oncologist to order the test.
What symptoms of breast cancer might I experience?
Find out what symptoms of breast cancer you are likely to experience in the future, and what symptoms you should contact your doctor about.null
What are my treatment options for breast cancer?
Your treatment will depend on the following:
- type of cancer
- grade of cancer
- hormone and HER2 receptor status
- stage of cancer
- your medical history and age
What types of surgical options are available for me?
You may be a candidate for surgical removal of the tumor (lumpectomy), surgical removal of the breast (mastectomy), and surgical removal of affected lymph nodes. Have your doctors explain the risks and benefits of each option.
If your doctors recommend a mastectomy, ask them whether surgical reconstruction of the breast is an option for you.
What types of medical therapy are available for me?
Ask your oncologist if any of the following therapies are available to you:
- hormone therapy
- monoclonal antibody therapy
What types of chemotherapy are options for me?
If your doctor recommends chemotherapy, ask them which combination chemo regimens are being considered. Find out what the risks and benefits of chemotherapy are.
It’s also important to ask what the possible side effects of the combination chemo regimens are. For example, if losing your hair temporarily is a concern for you, ask your oncologist whether the medications recommended would cause hair loss or alopecia.
What types of hormone therapy are options for me?
If your oncologist recommends hormone therapy, ask which of these therapies is being considered. Find out what the risks and benefits of hormone therapy are and the possible side effects.
What types of monoclonal antibody therapy are options for me?
Monoclonal antibodies block binding of substances to receptors on the surface of the tumors. If your oncologist recommends therapy with monoclonal antibodies, ask your doctor what therapies are being considered.
Find out what the risks and benefits are and what the possible side effects of the monoclonal antibodies are.
What types of radiation therapy are options for me?
Find out what the risks and benefits of radiation are for your cancer, and what the possible side effects are.
Will I need to take off time from work for any of the therapies. And when would I be able to go back to work?
Ask your oncologist if the side effects of your treatment will require you to take time off from work during or after treatment. And let your employer know in advance what your healthcare team recommends.
What is my outlook after treatment?
Your outlook after treatment depends on the following:
- your medical history
- your age
- type of tumor
- grade of tumor
- location of tumor
- stage of the cancer
The earlier your stage of breast cancer is at the time of diagnosis and treatment, the greater the likelihood that the therapy will be successful.
Are there any clinical trials for treatments that I can participate in?
If you have an advanced stage of breast cancer, you may want to think about clinical trials. Your oncologists may be able to point you in the right direction, or you can take a look at http://www.clinicaltrials.gov/ for more information.
Why did I get breast cancer?
This question may be impossible to answer, but it never hurts to ask. There may be risk factors like family history or lifestyle practices such as smoking cigarettes. Obesity can also increase the risk of getting breast cancer.
What things can I do at home to improve my outlook after treatment and improve my quality of life?
Ask your oncologist if there are lifestyle changes you can make. Recommended changes may include:
- making changes to your diet
- lowering stress
- stopping smoking
- reducing alcohol intake
These things will help speed your recovery from treatment and increase your chances of a better outcome.
What resources for support are available to me?
Getting help and support is important during this time. Think about attending local support groups for things like financial issues and getting practical support like finding transportation if needed. You’ll also be able to get emotional support from advocacy groups like the American Cancer Society.
If you have any questions for me, please do not hesitate to reach out to me. I will answer as honestly as I can regarding what I have experienced, and if I can’t answer, I will try to point you in the right direction.