Oncologist Appointment on Monday, August 15th

So a few days ago, I had my monthly oncologist appointment to chat with my doctor, have my blood checked, and get my Faslodex injections. I know that my doctor worries when his patients lose weight, so I was quick to tell him that my hubby and I have been doing Keto for the last three weeks. He was both happy and relieved to hear the news because it explained my 7lb loss since my appointment a month ago. Overall I am feeling much better, and a lot of it is thanks to Keto. Eating fresh food 95% of the time has made a big difference in my well-being. It takes a lot of planning, and it has easily doubled our grocery bill, but we are not eating out, so the cost increase is really only due to the ridiculous price of food.

I have been posting pictures and recipes on our Facebook page, M&M Bistro Recipies, for a few years, and now I am adding some of the Keto recipes we have recently discovered as we change our lifestyle to a healthier way of eating.

As far as my bloodwork is concerned, it is a little worse. My white blood cell count dropped a little more from last month, so my ANC dropped as well to 1.3, and it should be at 1.5 or higher. There is no need for significant concern at this time, but if it continues to drop, I may have to change to the weaker dose of iBrance, which would be from 100mg to 75mg. There isn’t anything I can do to help my white blood cell count rise, so we will wait and see where it is in September and go from there. My red blood cell count is lower, but that only affects my energy level, which has not been the best but is improving thanks to eating healthier.

I have had quite a few people reach out to me recently to ask me questions about my experience over the last 3 1/2 years concerning going through breast cancer, being cancer-free, and then having cancer return. I am always open to helping others through such a difficult and confusing time as it can be with a breast cancer diagnosis. With that said, please do not hesitate to contact me, and as always, thank you for being here.

Sorry I Have Been Away, Time To Catch Up

I am sorry that I have been away from here for over five months. I have been dealing with some complicated things, and it has been challenging for me to come here and write about them. This is where I can release my thoughts with the hope of feeling better, but I haven’t been able to do that until now. Even now, I might not share everything with you because I feel like I can’t. I know I said that I would always be very open with my readers when I started this blog, but some things have happened that I am not comfortable with sharing just yet, and I may never be. With all of that said, here is a quick recap of my appointment with my surgeon in September and my oncologist in December of 2021.

In September, I had my annual mammogram and ultrasound followed by an appointment with my surgeon to find out the imaging results and have my yearly checkup. My imaging was clear, and my exam went well. My scars are fading; everything has healed beautifully and looks as it should, so that was excellent news! I have noticed that many women I know who have gone through breast cancer have a mammogram and ultrasound every six months, where I have them every 12 months, so I asked my surgeon about it. He said that it is unnecessary to have them more often than 12 months unless I notice an issue. As usual, my surgeon answered my questions and put my mind at ease, reminding me that I have the best doctor for me and my needs.

My appointment with my oncologist in December was both good and frustrating. Around Thanksgiving, I started having pain on the left side of my head, and at times it hurt so bad that I had to take some of the oxycodone that I had leftover from my surgeries and chemo. The pain went from just outside of my ear, up the side of my head, and over to the top of my head. My oncologist wasn’t overly concerned about me having a tumor in my brain but to be sure, I had an MRI just before Christmas. My MRI came back clear, so that was frustrating only because I had no explanation for the pain and discomfort I was in 24/7 by that time. So the pain continued until suddenly, one day in mid-January, I realized that the pain was gone, and it has not come back since. I still have no idea of what was causing me so much pain, but I am so happy that it is gone. The good parts about my appointment are that my blood panels came back normal for the first time since I started chemo in May 2019. Even more good news is that on October 3rd, the day of my final chemo treatment in 2019, I reached my first significant milestone; I made it to my second anniversary of being cancer-free! I am incredibly grateful that I have made it through the first two years, and I am hopeful that I will continue to stay healthy and cancer-free until my next milestone in another three years, at five years.

If you know me on Facebook, you know what has happened in the past two days; if you don’t, please read my next post which will be posted later tonight, where I explain what is happening with me now.

Appointment With My Oncologist

When I had my appointment with my oncologist on August 5th, I was hoping that my red blood cell count would finally be in the normal range, but it isn’t quite there yet. I wasn’t too surprised as I have been tired lately and not feeling the greatest. At this point, nothing but time will help, so I am trying to be patient.

I am still having a lot of issues with my memory. It seems like only my short-term memory is being affected, but it is starting to drive me crazy. My oncologist asked me if I am still “fuzzy,” and I said that yes, I am still having issues. So, I am taking a week off Anastrozole to see if it helps clear my head or not.

Once I have my next appointment in December, I will finally be on a different schedule with my oncologist. I will switch from seeing him every three or four months to every six months. I am making progress, and it feels good!

Long Break

Hi, I can’t believe that we are already in July and that it has been over three months since I published a post here! In my defense, I can tell you that I have had a lot going on since the middle of April.

In early May, I started looking for a house to move to because with the housing market going crazy, I was sure that the owner of the house we had been renting for the last six years would want to sell. About a week later, my suspicions were confirmed by a phone call from the owner. Finding a house was challenging because the home would be listed online, and not even 24 hours later, there were multiple applications on it. Right before we were due to leave on vacation, we went to see a house, and it was perfect! At first, we didn’t know if we had gotten it, but right before we flew out of town, we received the news that we had been approved and would get the keys on June 1st after we returned from vacation. So, my time was filled with stress from looking for a house and then getting ready to go on vacation, but it was worth it because we have moved into a house that is perfect for us and our vacation was wonderful!

While on vacation, we renewed our wedding vows on our 17th anniversary, and everything was perfect on our special day! Ocho Rios, Jamaica, is one of our favorite places to relax and reconnect with each other, so why not renew our vows while there. We were supposed to renew our vows two years ago, but between my breast cancer diagnosis and treatment in 2019 and Covid causing the world to stop in 2020, we had to post phone our trip and ceremony until this year.

I will update you with everything that has been going on over a few different posts in the coming days, which will include a huge milestone, a follow-up appointment with my surgeon, and how I am doing these days.

I will be back soon! πŸ™‚

My 5th Surgery: Follow-up Appointment **WARNING: GRAPHIC SURGERY PHOTOS**

Last Wednesday, I had an appointment at my surgeon’s office to have my steri-strips removed. I briefly noticed that when my appointment was made, the scheduler said a different name as far as who I would have my appointment with, and it was not my surgeon. I didn’t think much of it, and she didn’t say anything else about the appointment, so I didn’t ask her about it.

When I went to my appointment, I wasn’t too surprised that a different doctor, a PA, walked into the room with a nurse, but I was silently wondering what was going on. By this time, I was three weeks post-op, and out of about thirty steri-strips, I had only three left that were still attached to my incision, so removing them was quick and easy.

3.5 weeks after surgery

After he removed the steri-strips, I asked him, “so am I not seeing my surgeon anymore?” He looked surprised that I asked him that. He responded by asking and saying, “They didn’t tell you about me? I have so many years of experience.” No, they didn’t tell me that I would not be seeing my surgeon anymore. So he went on to say that he wanted to see me in two months, and my mind was racing. I asked him about my annual mammogram coming up in August. Last year, my surgeon ordered and scheduled my mammogram and reviewed the results with me. He said that he would release me to my regular physician and that his office could take care of it. I let him know that I had decided to find a different doctor to see and that since I see my Oncologist every three months and he draws my blood each time, I am not in a hurry to find a new doctor. He said he would see me after my mammogram in August, no need to come in, in two months.

I can’t remember my exact wording, but I told the PA that I would rather my surgeon order my mammogram and follow up with me like he did last year. He again told me how many years of experience he has, and I said, “I have been coming here for two years; it’s about my comfort level.” I didn’t want to insult him, but at the same time, I wanted to make sure that he understood what I was saying. So on my way out, I stopped by to schedule my follow-up appointment after my mammogram in August, with my surgeon. His office will schedule the mammogram a few days before the follow-up appointment, and they will let me know the dates and available times I can choose from.

I was numb when I got home from the appointment. I kept running the conversation I had with the PA through my mind. After getting over the initial shock of everything, I realized just how paralyzed and uncomfortable I was during the appointment, so I decided to call the office manager the next day and talk to her about it. When I spoke with her, I explained that I was uncomfortable during my appointment for several reasons. Not only was the PA a different doctor, but I have been my surgeon’s patient for over two years, so we have a rapport with each other, I am comfortable with him, and I trust him. Quite simply, I don’t know the PA, so I was uncomfortable as soon as he walked into the room. I told her that I was not informed that I would not be seeing my surgeon anymore, which didn’t help the situation. Also, because I have had so many surgeries, including breast implant placement, I want to continue to see my surgeon annually for my mammogram and exam. Yes, I could see any doctor for a mammogram, but he is a breast specialist, so it makes sense to see him for that particular part of my health plan each year. I also let her know that I was so uncomfortable that I held the paper top I had on closed until the PA went to look at my incision. If I had been seeing my surgeon, I wouldn’t have even put the left side up on my shoulder because I knew that he would be looking at my incision and removing any remaining steri-strips; again, it is about my comfort level.

She completely understood how I felt and said that the PA had been there since June 2020 to help out with follow-up and routine appointments because, sadly, my surgeon is inundated with patients. She said that some patients don’t care about seeing the PA, but some are like me and prefer seeing the surgeon. She apologized for how I felt and said that if I am uncomfortable seeing the PA, I don’t have to see him. She even put a flag on my file, noting that I only want to see my surgeon moving forward. I let her know that I would like to go ahead and see my surgeon for a follow-up in two months before I go on vacation, and she made that appointment for me.

Thanks to my call with the office manager, I feel much better about the whole situation, and I will confidently walk into my appointment in May. I didn’t ask her who was responsible for explaining to me about the PA and his role in my care; it doesn’t matter now that everything has been resolved. Was it wrong not to inform me? Absolutely! People make mistakes all the time, but I won’t let myself dwell on the situation. I am choosing to move forward knowing that my wishes will be honored.

My 5th Surgery: Follow-up Appointment with My Surgeon **WARNING: GRAPHIC SURGERY PHOTOS**

Yesterday, I had my first follow-up appointment with my surgeon. Once the tech was done with my blood pressure check and updating my information, she removed my bandage. She apologized at one point because she was pulling on the bandage a little harder because the gauze was sticking to it. I assured her that she wasn’t hurting me because I was still numb under my arm from my first surgery almost two years ago. I asked her how the incision looked, and she said that everything looked good. She then told me that my surgeon would be in soon to see me and left the room.

A few minutes later, my surgeon walked in. I turned to look at him and noticed that he had a winter coat on. I had been sitting there with half of my paper top on burning up because the heat was on. I laughed and said, “You do know that it is 73 degrees outside, right?”; He smiled and said that for some reason, he is always cold when he is in the office.

I have a ton of steri-strips, about 30, and my incision is about 9 inches long. This is my most extended scar so far, but because of how my surgeon combines internal stitches with steri-strips for healing, my scar will be minimal, and it will become less noticeable with time. The scar on my chest’s right side from the first reconstruction surgery is barely noticeable 17 months later, so I am sure this scar will be the same.

I know it looks gnarly, but I am not in much pain at all.

Once we were done talking about this recent surgery, he said that this should be my last surgery. He is confident that I will be fine from here on out and that I will not require any further surgeries. The only way I would need surgery in the future would be if I develop Capsular Contracture. We are both aware from previous conversations that I could develop that particular complication because I went through many radiation treatments and I have implants. I will need to stay mindful of any changes that I am noticing and let him know. The only way to fix Capsular Contracture is to go back into surgery and have my breast implants replaced, so hopefully, I will never have to deal with that.

I asked him if I can start walking on my treadmill. I told him that I had finally fought off the fatigue plaguing me for over a year and that I was getting back to working out again before this last surgery. He said, “so you are itching to get back on,” to which I replied, “yes, I have been since the day of my surgery!” He said that I could walk on my treadmill, but I can’t swing my arms; I need to keep them at my sides, and I can’t do anything too strenuous. I need to keep resting and healing over the next two weeks, and then I should be released from any restrictions once the steri-strips are removed during my next appointment. I told him that my goal is to lose another 20 lbs or so, and he said that it would be ideal for me to do that as it is essential to keep my body mass low considering the type of cancer I had. Estrogen-fed breast cancer thrives when a patient’s BMI is too high, and mine is too high because I am about 20 lbs overweight. So the best thing I can do for myself to keep from having a recurrence of my cancer is to continue exercising, watch my portions, and what I am eating to get to an ideal weight and BMI.

To end my appointment, I thanked him for doing this last surgery. I let him know that I could feel the difference later on, on the day of my surgery, that the area was gone, my chest looks much better, and that I felt much better. I said, “First, you saved my life, and now you are helping me improve my life. I will never be able to thank you enough.” He looked down and away from me when I said that to him, with an almost bashful look. His reaction at first surprised me, but then it didn’t because his genuine reaction reminded me of why I am so grateful that he is my doctor and how lucky I am that he has been by my side from the beginning. He does not have a big ego like some surgeons; he is passionate about his work, humble and caring, and it shows.

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