Oncologist Appointment & My Monthly Faslodex Injections

On Monday, I had my appointment with my oncologist to get an update on how I was doing, run a few blood panels, determine what to do about iBrance, and get my Faslodex injections.

All in all, I have been doing OK over the last month. I didn’t feel better until last week because it took a while for the iBrance to leave my system. I have had ups and downs emotionally because, quite simply, it is hard to deal with having stage 4 cancer. Some days I am upbeat and optimistic, and on other days, I am very depressed and overwhelmed. At this point, I am about 50/50 with those extremes, but I am hoping that I will start to have more good days than bad once my body has adjusted to the medications.

I was very shocked by my blood panel results because of the drastic changes that took place in only one month. My White Blood Cell count went up quite a bit from 2.6 in April to 5.9 on Monday. My ANC was of huge concern in April at .8, but on Monday, it was 3.5. My Red Blood Cell count was still low on Monday, but that was not a surprise because I am fatigued most of the time, no matter how much rest and sleep I get. It amazes me how much the iBrance damaged my body in only one round of medication, 21 days, and how quickly my body repaired itself in the last month while I was off of it.

My oncologist decided to put me back on iBrance but at 100mg, not 125mg. It is clear that the 125mg dose was too much for my body to deal with after seeing the huge changes in my blood in only one month. I should also say here that the first blood panels that were done in March when my treatment started were completely normal for the first time in three years, so this really was a significant change caused by the iBrance 125mg dose. 80% of stage 4 cancer patients are not able to take the 125mg dose, so I am not alone when it comes to having these issues, and I have been assured that studies have found that there is little to no difference in the effectiveness of the medication between 125mg and 100mg. Many of my oncologist patients have been on iBrance and Faslodex for years and have been doing well at stage 4. So on Monday, I started my next round of iBrance for the next 21 days. I have all of the medication I need should I start dealing with side effects again, but as of today, day three, I am doing fine, just dealing with a slight headache.

The longest part of my appointment was getting my Faslodex injections. The process takes a while because they have to order the medicine from the pharmacy, which is right there in my oncologist’s office, and then they warm up the medication to thin it out so it can be injected. I know it sounds terrible, and honestly, it is. I hate getting shots of any kind, but these are worse because they are given in my butt muscle, one on each side. On Monday, I was in quite a bit of pain once I started walking to my car, so once I got in, I sat there for a few moments to gather myself before driving home. I continued to hurt as the evening wore on, so I took a few extra-strength acetaminophen, which thankfully gave me the relief I needed.

My next appointment with my oncologist is scheduled for June 20th. I am fully in my monthly schedule now, so the only change from how my appointment went this month will be when I have my PET scan done. Because I had to take this past month off from iBrance, I will not have my next PET scan until July. I wish it were sooner, but I have to take iBrance for three months before getting the scan so we can see what progress the iBrance has made on shrinking my tumors.

I want to say a huge “thank you” to my family and friends that have been taking the time to contact me and ask me how I am doing. It really helps me, especially on my bad days, to be reminded that more people care about me than I realize. Bless you, and thank you for continuing to support me through this difficult time! 💕

Radiation Oncologist Appointment

A few days ago, I had an appointment with my radiation oncologist. I hadn’t seen her in over two years, so it was nice to see her, but I wish it had been under different circumstances. After we caught up on where we had been, I was finally able to show her the pictures from our vow renewal ceremony, so that was nice, and what we had been doing; we discussed my cancer.

Unfortunately, since the CT of my neck came back clear, she has to wait for the results from my PET scan. She needs to see the exact size and location of the tumor to figure out if she can treat me or not. If there is even the slightest part of the tumor in my previous treatment area, she can’t put me through radiation. I didn’t know that you couldn’t radiate the same area more than once, so we must have clear images to compare from 2019/2020 to today. My PET scan is tomorrow, Friday, and I am going back to my oncologist next Tuesday for the results.

So after my initial appointment, my doctor asked if I could come back in an hour to do some plotting with the tech. I didn’t need to be anywhere, so I said I could come back, no problem. When I came back, they took me to the CT room, measured a few coordinates, and went ahead and marked me with stickers in case I could have radiation soon. When I laid down on the table, my doctor came over and felt where the tumor was, and she said, ” it seems like it is very superficial; that might be why the CT scan didn’t see it.” I hadn’t thought of that being the reason for the clear CT, but it makes sense.

Next, they had me put both arms over my head, which is the position I will have to be in for the radiation treatments. It has been almost three years since my first surgery in April 2019, and it still hurts to have my arms up over my head for any length of time. I have gained a lot of mobility back since that first surgery but not 100%. Because of the pain I am in when in that position, they will make molds for me to rest my arms in so the pain and pressure will be decreased, making me more comfortable. When I put my arms up, my doctor felt the tumor again and said it had dropped slightly in location, taking it closer to the area where I had radiation before; this is not good if I want radiation to be the primary treatment to get rid of the tumor.

So, now we are waiting for my PET scan and the results. What will happen if I can’t have radiation? I am guessing that I will have to have surgery to remove the tumor, but after that, I am not sure. I will be asking my oncologist about that when I see him on Tuesday next week.

Scan Results & My Treatment Plan

So I guess if there can be any good news that goes along with having cancer again, that would be the good news I received today.

There is a spot on one of my ribs in the nuclear medicine bone scan. I am confident that it is from when I fractured my rib ages ago. We need to be sure that it is from my fracture and not more cancer, so I have a PET scan scheduled for next Friday. Something odd is that the CT of my neck came back clear, yet that is where the tumor is located; the CT couldn’t find the tumor that I can feel, crazy! My other CT came back clear, so the cancer is isolated to my neck. I will have to go through radiation, so I have an appointment with my radiation oncologist next Tuesday. She will determine how much radiation I need and if I will need surgery after radiation.

After radiation, I will be put on a new inhibitor because the one I have been on for the last two years didn’t work other than possibly keeping the new cancer from spreading. I will also be going through chemotherapy again, but this time, it will be in pill form, not by infusion, and for at least two years. But the good news is that I will not lose my hair while on the chemotherapy drug.

As far as my diagnosis, I have the same cancer I had before, invasive ductal carcinoma, breast cancer stage 3c. Because the tumor is nearby where the cancer was in 2019/2020, in the lymph nodes in my neck, and it has not spread to my organs, it is still considered breast cancer. Oddly enough, the tumor is on the same side of my body this time as well.

All in all, I am very relieved! I will update you after my next appointment.

I Have Cancer, Again

I received my biopsy results yesterday, and they were positive for cancer. My oncologist’s office called me in the morning and scheduled an appointment right away for today to discuss our next steps.

I was hoping that my oncologist could tell me what type of cancer I have today, but we do not have those results back yet, so I will hopefully know in a few more days. There are a couple of possibilities as far as my treatment goes, but I won’t have a definite plan until scans are done, and the results are back.

On Monday, I will be going to the hospital for a bone scan-nuclear medicine, CT neck with contrast, and CT C/A/P with contrast {ct scan of chest, abdomen, and pelvis.} If there is cancer anywhere besides my neck, we will know for sure once the scans are completed and analyzed.

On Friday next week, I will meet with my oncologist to review the scan results and my treatment plan. I do know that I will most likely have radiation therapy on my neck; anything beyond that will be determined during my appointment.

More to come…

Ultrasound-Guided Biopsy: **WARNING: SENSITIVE MATERIAL**

So here we are again, another biopsy, just shy of a few weeks from three years ago when my surgeon did my first biopsy and diagnosed me with breast cancer.

This time I was only in pain when my surgeon gave me the shot of lidocaine. He kept asking me if I was OK because the needle was in for a little bit as he moved it around at different angles to numb the area around the mass. I was facing away from him so he couldn’t see my face for a reaction, so I appreciated him asking me how I was doing multiple times, as it was just another example of what a kind and caring doctor he is.

I had to lay on my right side so he could easily get to the mass because it was at an odd angle on my neck. Since I was lying on my side, I was able to watch the ultrasound monitor and see him put each needle in the mass, collect a sample, then pull the needle back out. As he put each sample into a small container with a tiny amount of saline, his assistant closed each container; there were three in total. He said that the mass is about 1 centimeter, so I hopefully caught it early enough.

All in all, everything went fine. I should have the results back at the latest on Tuesday. I couldn’t help but notice that my surgeon told me that he was taking the samples over to the lab personally, right away. Yes, that did concern me a little, his urgency, and that only made my gut feeling about all of this feel more valid. He also told me that he spoke with my oncologist and that if my results are positive, my oncologist will order the PET scan asap.

Minor bruising today, along with a small hematoma. I am very, very sore, but you would be too if you had four needles poked in you!

My gut feeling is based on these events, are they coincidences? This mass is very much like the first one three years ago in many ways. It feels the same and looks the same on the ultrasound, and there is something else, each time I have had pain in another part of my body before finding a mass. I first had pain in my neck, shoulder, and shoulder blade a few weeks before finding my tumor. I thought I had slept funny, but as the days went by, the pain did not go away. This time, around Thanksgiving, I had terrible pain on the outside of my ear, going up the side of my head to the top of my head. As I said in a previous post, my oncologist ordered an MRI of my head, but it was clear, so we had no explanation for my pain. I was in agony until about two weeks ago when the pain suddenly stopped, and I now have found another mass.

I will update as soon as I have the results…prayers! 💕

I Found A Lump

A few days ago, on Tuesday, I found a lump on the left side of my neck at the base right where my neck curves into my shoulder; the same side of my body where my breast cancer was, and the same side where I had all of the terrible pain in my head. I was reading through my emails, playing with my necklace as I often do, and my fingers felt something odd. I took off my necklace to investigate further, and it felt exactly like the tumor I found in my breast a little over three years ago, as this one is a small round bump with a lump next to it.

It should be no surprise that I went into full panic mode. I thought about what to do next and called my husband. I told him about what I found and that I thought about calling my oncologist, but I knew he would want imaging done. I then remembered that my surgeon has a mobile ultrasound machine at his office, so it made sense to see him first and have him do an ultrasound. My husband agreed with my decision, so I called my surgeon’s office to see if I could get an appointment the following day, yesterday, which is an office day for him to see patients. Luckily, I was able to get an afternoon appointment to see him and have the ultrasound done.

During my appointment, he first took a look with the ultrasound at the lump I described to him, then he looked at the lymph nodes under my left arm. He couldn’t find anything unusual under my arm, and he said that he was not sure what the lump was on my neck, other than a mass. He asked me if I had contacted my oncologist yet, and I explained that I hadn’t called him because I knew he would want imaging, so I wanted to see him, my surgeon, first for the ultrasound. Then he asked if I wanted to do a PET scan or a biopsy first as we need to find out what we are dealing with this time. I asked his opinion and told him that I trust his judgment, which I do without question, and we agreed that a biopsy should be done first, and then if it comes back positive, we will do a PET scan to see if I have any other tumors in my body. So early in the morning on Friday, I will go back to his office, and he will do a needle biopsy. He gave me the option of being asleep during the biopsy or using the needle with a local, and I chose the needle because I didn’t see the need to be put to sleep for a biopsy after having five surgeries in twenty-two months.

Quite honestly, I am scared. I would go into more about my fear, but it touches on what I am not ready to share yet. The only comfort I have right now is that I already know the possible next steps, no surprises this time, which of course is both good and bad.

I will update as soon as I have my biopsy results which should be some time between late Friday and Monday.

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