Oncologist Appointment on Monday, August 15th

So a few days ago, I had my monthly oncologist appointment to chat with my doctor, have my blood checked, and get my Faslodex injections. I know that my doctor worries when his patients lose weight, so I was quick to tell him that my hubby and I have been doing Keto for the last three weeks. He was both happy and relieved to hear the news because it explained my 7lb loss since my appointment a month ago. Overall I am feeling much better, and a lot of it is thanks to Keto. Eating fresh food 95% of the time has made a big difference in my well-being. It takes a lot of planning, and it has easily doubled our grocery bill, but we are not eating out, so the cost increase is really only due to the ridiculous price of food.

I have been posting pictures and recipes on our Facebook page, M&M Bistro Recipies, for a few years, and now I am adding some of the Keto recipes we have recently discovered as we change our lifestyle to a healthier way of eating.

As far as my bloodwork is concerned, it is a little worse. My white blood cell count dropped a little more from last month, so my ANC dropped as well to 1.3, and it should be at 1.5 or higher. There is no need for significant concern at this time, but if it continues to drop, I may have to change to the weaker dose of iBrance, which would be from 100mg to 75mg. There isn’t anything I can do to help my white blood cell count rise, so we will wait and see where it is in September and go from there. My red blood cell count is lower, but that only affects my energy level, which has not been the best but is improving thanks to eating healthier.

I have had quite a few people reach out to me recently to ask me questions about my experience over the last 3 1/2 years concerning going through breast cancer, being cancer-free, and then having cancer return. I am always open to helping others through such a difficult and confusing time as it can be with a breast cancer diagnosis. With that said, please do not hesitate to contact me, and as always, thank you for being here.

Three-Month PET Scan Results and Oncologist Appointment on July 18th

I had my first 3-month PET scan to check the progress of my tumors last Monday. As usual, I had what they call “scanxiety” from the day of my scan until today. “For people who have had a cancer diagnosis, undergoing imaging scans can lead to a variety of emotions. It is common to feel stress or worry in the period before a medical test, during the test, and while waiting for test results. We call these feelings “scanxiety.”

My husband and I met with my oncologist to get the results from my PET scan, run my blood panels, and get my Faslodex injections. My blood panels came back with several low levels, meaning they are below the normal range, but as my oncologist explained, my blood looks good for someone on chemotherapy medication, so he is happy with where I am. As far as my PET scan results are concerned, I am happy to say that I have nothing but good news! My tumors have shrunk slightly and have gone from being active to showing decreased activity, meaning they are not growing, and I have no other signs of metastatic disease, so no new tumors have been detected. 🙂 So the meds are working, and we are staying on the current plan.

So we discussed when my next PET scan would be. My oncologist said that the scans are usually in the 3 to the 6-month range. He feels that three months is too early but to wait until six months makes him nervous, so my PET scan will be in 4 months, making it in November.

My husband and I are both so relieved! It has been very difficult to deal with the uncertainty of whether the medications I am on are doing their job or not. Now we know that they are fighting my tumors, killing them little by little and preventing the growth of new tumors.

Oncologist Appointment & My Monthly Faslodex Injections

On Monday, I had my appointment with my oncologist to get an update on how I was doing, run a few blood panels, determine what to do about iBrance, and get my Faslodex injections.

All in all, I have been doing OK over the last month. I didn’t feel better until last week because it took a while for the iBrance to leave my system. I have had ups and downs emotionally because, quite simply, it is hard to deal with having stage 4 cancer. Some days I am upbeat and optimistic, and on other days, I am very depressed and overwhelmed. At this point, I am about 50/50 with those extremes, but I am hoping that I will start to have more good days than bad once my body has adjusted to the medications.

I was very shocked by my blood panel results because of the drastic changes that took place in only one month. My White Blood Cell count went up quite a bit from 2.6 in April to 5.9 on Monday. My ANC was of huge concern in April at .8, but on Monday, it was 3.5. My Red Blood Cell count was still low on Monday, but that was not a surprise because I am fatigued most of the time, no matter how much rest and sleep I get. It amazes me how much the iBrance damaged my body in only one round of medication, 21 days, and how quickly my body repaired itself in the last month while I was off of it.

My oncologist decided to put me back on iBrance but at 100mg, not 125mg. It is clear that the 125mg dose was too much for my body to deal with after seeing the huge changes in my blood in only one month. I should also say here that the first blood panels that were done in March when my treatment started were completely normal for the first time in three years, so this really was a significant change caused by the iBrance 125mg dose. 80% of stage 4 cancer patients are not able to take the 125mg dose, so I am not alone when it comes to having these issues, and I have been assured that studies have found that there is little to no difference in the effectiveness of the medication between 125mg and 100mg. Many of my oncologist patients have been on iBrance and Faslodex for years and have been doing well at stage 4. So on Monday, I started my next round of iBrance for the next 21 days. I have all of the medication I need should I start dealing with side effects again, but as of today, day three, I am doing fine, just dealing with a slight headache.

The longest part of my appointment was getting my Faslodex injections. The process takes a while because they have to order the medicine from the pharmacy, which is right there in my oncologist’s office, and then they warm up the medication to thin it out so it can be injected. I know it sounds terrible, and honestly, it is. I hate getting shots of any kind, but these are worse because they are given in my butt muscle, one on each side. On Monday, I was in quite a bit of pain once I started walking to my car, so once I got in, I sat there for a few moments to gather myself before driving home. I continued to hurt as the evening wore on, so I took a few extra-strength acetaminophen, which thankfully gave me the relief I needed.

My next appointment with my oncologist is scheduled for June 20th. I am fully in my monthly schedule now, so the only change from how my appointment went this month will be when I have my PET scan done. Because I had to take this past month off from iBrance, I will not have my next PET scan until July. I wish it were sooner, but I have to take iBrance for three months before getting the scan so we can see what progress the iBrance has made on shrinking my tumors.

I want to say a huge “thank you” to my family and friends that have been taking the time to contact me and ask me how I am doing. It really helps me, especially on my bad days, to be reminded that more people care about me than I realize. Bless you, and thank you for continuing to support me through this difficult time! 💕

Radiation Oncologist Appointment

A few days ago, I had an appointment with my radiation oncologist. I hadn’t seen her in over two years, so it was nice to see her, but I wish it had been under different circumstances. After we caught up on where we had been, I was finally able to show her the pictures from our vow renewal ceremony, so that was nice, and what we had been doing; we discussed my cancer.

Unfortunately, since the CT of my neck came back clear, she has to wait for the results from my PET scan. She needs to see the exact size and location of the tumor to figure out if she can treat me or not. If there is even the slightest part of the tumor in my previous treatment area, she can’t put me through radiation. I didn’t know that you couldn’t radiate the same area more than once, so we must have clear images to compare from 2019/2020 to today. My PET scan is tomorrow, Friday, and I am going back to my oncologist next Tuesday for the results.

So after my initial appointment, my doctor asked if I could come back in an hour to do some plotting with the tech. I didn’t need to be anywhere, so I said I could come back, no problem. When I came back, they took me to the CT room, measured a few coordinates, and went ahead and marked me with stickers in case I could have radiation soon. When I laid down on the table, my doctor came over and felt where the tumor was, and she said, ” it seems like it is very superficial; that might be why the CT scan didn’t see it.” I hadn’t thought of that being the reason for the clear CT, but it makes sense.

Next, they had me put both arms over my head, which is the position I will have to be in for the radiation treatments. It has been almost three years since my first surgery in April 2019, and it still hurts to have my arms up over my head for any length of time. I have gained a lot of mobility back since that first surgery but not 100%. Because of the pain I am in when in that position, they will make molds for me to rest my arms in so the pain and pressure will be decreased, making me more comfortable. When I put my arms up, my doctor felt the tumor again and said it had dropped slightly in location, taking it closer to the area where I had radiation before; this is not good if I want radiation to be the primary treatment to get rid of the tumor.

So, now we are waiting for my PET scan and the results. What will happen if I can’t have radiation? I am guessing that I will have to have surgery to remove the tumor, but after that, I am not sure. I will be asking my oncologist about that when I see him on Tuesday next week.

Scan Results & My Treatment Plan

So I guess if there can be any good news that goes along with having cancer again, that would be the good news I received today.

There is a spot on one of my ribs in the nuclear medicine bone scan. I am confident that it is from when I fractured my rib ages ago. We need to be sure that it is from my fracture and not more cancer, so I have a PET scan scheduled for next Friday. Something odd is that the CT of my neck came back clear, yet that is where the tumor is located; the CT couldn’t find the tumor that I can feel, crazy! My other CT came back clear, so the cancer is isolated to my neck. I will have to go through radiation, so I have an appointment with my radiation oncologist next Tuesday. She will determine how much radiation I need and if I will need surgery after radiation.

After radiation, I will be put on a new inhibitor because the one I have been on for the last two years didn’t work other than possibly keeping the new cancer from spreading. I will also be going through chemotherapy again, but this time, it will be in pill form, not by infusion, and for at least two years. But the good news is that I will not lose my hair while on the chemotherapy drug.

As far as my diagnosis, I have the same cancer I had before, invasive ductal carcinoma, breast cancer stage 3c. Because the tumor is nearby where the cancer was in 2019/2020, in the lymph nodes in my neck, and it has not spread to my organs, it is still considered breast cancer. Oddly enough, the tumor is on the same side of my body this time as well.

All in all, I am very relieved! I will update you after my next appointment.

I Have Cancer, Again

I received my biopsy results yesterday, and they were positive for cancer. My oncologist’s office called me in the morning and scheduled an appointment right away for today to discuss our next steps.

I was hoping that my oncologist could tell me what type of cancer I have today, but we do not have those results back yet, so I will hopefully know in a few more days. There are a couple of possibilities as far as my treatment goes, but I won’t have a definite plan until scans are done, and the results are back.

On Monday, I will be going to the hospital for a bone scan-nuclear medicine, CT neck with contrast, and CT C/A/P with contrast {ct scan of chest, abdomen, and pelvis.} If there is cancer anywhere besides my neck, we will know for sure once the scans are completed and analyzed.

On Friday next week, I will meet with my oncologist to review the scan results and my treatment plan. I do know that I will most likely have radiation therapy on my neck; anything beyond that will be determined during my appointment.

More to come…

%d bloggers like this: