I can’t believe that it is already October 1st! Up until now, it seemed like 2020 was going by as slowly as possible, tormenting everyone with endless challenges and sacrifices. But it is finally October; Fall has begun, and the end of the year is around the corner.
I have to admit that October never really held any special significance for me in the past, but after going through my journey with breast cancer, it has a new meaning for me. October is a time to reflect on everything that I went through last year, to help newly diagnosed women in any way I can through a breast cancer app that I am active on, to support those going through treatments and surgeries, to chat with other survivors and see how they are coping, and to remember those that we have lost to this horrible disease.
I received a free eBook today that I want to share with everyone because, as I have learned over the last 19 months, knowledge is power! I share information that I trust with you, my readers, because I have been there. I know how scary the words “you have breast cancer” are and the thoughts that flood your brain after hearing it.
If you have any questions for me or if you just want someone to talk to, please contact me at any time. I have a Contact Me page on this website, or you can contact me through one of my Social Network links at the bottom of each page on this website.
Your free eBook, Breast Problems That Aren’t Breast Cancer, is here! We are thrilled to provide this helpful guide for you.
Did you know National Breast Cancer Foundation is committed to helping people (including you!) with their breast health? NBCF is helping people at every step of the journey by providing breast health education, delivering access to vital early detection screenings and breast health services to those who could not otherwise afford them, and helping those diagnosed with breast cancer—and their families—navigate the complex cancer care system.
I have been going through quite a bit of fatigue and depression lately. I am still experiencing fatigue almost every day, so when I do have a burst of energy, I make sure to take advantage of it. On days when my entire body is hurting, I try to remind myself that I had my 4th surgery not that long ago, so I don’t need to be so hard on myself when I just want to rest. Resting has become another problem in the form of not being able to sleep properly. It is not out of the realm of possibility for me to be awake until 2 or 3 in the morning, sometimes even later, at least a few nights a week. I realize that fatigue is linked directly with depression, so I am beginning to understand how everything I have been dealing with within the last few months is all part of the same problem.
Not all of my depression is linked to breast cancer, but most of it is. I was talking to a breast cancer patient the other day, and she was asking me how long it has been since I had finished each portion of my treatment. I hadn’t thought about the timing of everything in a while, so as I was answering her questions, I was surprised that time has passed much quicker than I thought. It has been 11 months since my last chemo treatment, 7 months since my last radiation treatment, and 4 months since my previous reconstruction surgery; at times, it feels like a lifetime ago, but when I am having a bad day, it all seems like it happened yesterday. Even with all of that time passing so quickly, my body and mind are still healing. I have been experiencing what I thought were some of the side effects that I had at the end of chemo again, but chemo ended almost a year ago, so I am beginning to realize that some of them are symptoms of depression, as described below. Luckily, we are going on vacation soon, and the timing couldn’t be more perfect. I need a break; I need time away from everything that has been hurting my heart and soul lately, and I need to get my mind and body back on track, and I will!
Depression may be a side effect of breast cancer and fatigue is often a symptom of depression. Some people may have a tendency to depression, which treatment can make worse. At the same time, fatigue itself can lead to depression. Not knowing why you feel drained week after week, and not knowing that this abnormal feeling is normal for many people going through treatment, can make you depressed.
Treatment for breast cancer may leave you feeling sad, tired, or depressed. These feelings are complex conditions, resulting from and affected by many factors: your cancer diagnosis and treatment, aging, hormonal changes, your life experiences, and your genetics.
If you’re abruptly going through menopause 10 years earlier than you naturally would, with a quick lowering of hormone levels, you may experience feelings similar to postpartum depression.
Sadness is a natural part of your breast cancer experience, something you need to express and move through. If you don’t allow yourself to feel sad and grieve, the unresolved grief gets in the way of feeling better and getting better. You may be having hot flashes and trouble sleeping. You may be feeling overwhelmed or even debilitated. All of these factors can lead to fatigue and depression.
How can you tell the difference between fatigue, sadness, and clinical depression? The symptoms of clinical depression include:
an inability to cope
an overwhelming feeling of helplessness and hopelessness
an inability to concentrate
loss of pleasure in what used to make you happy
lack of interest in sex or food
If you think you’re depressed, talk to your doctor. If your doctor doesn’t have experience treating depression, ask for the name of an accredited psychotherapist. Together you can sort out if what you’re feeling is depression or extreme fatigue. Therapy can help you feel supported and allow you to talk about what’s bothering you. Antidepressant medicines can help ease feelings of sadness and anxiety and help you feel better. An accredited psychotherapist with experience treating depression can help.
I came across this article recently and it was really shocking to me. I have always understood that breast cancer grows by cell division, but I had no idea of the timing from when it starts to when you can feel a lump in the breast like I did. I know that the information below is scary, but I am posting this to inform my readers because I truly believe that when it comes to breast cancer, early detection and information are key. If you won’t listen to me, listen to a doctor who makes it clear in the article below that a yearly mammogram is so incredibly important. As you know, I also believe that a monthly self-exam between mammograms is just as important. I don’t want anyone to go through what I have been through in the last 18 months, so if I can help just one reader understand the importance of mammograms then I have done my job.
Speaking of mammograms…my last mammogram was before my first surgery in April 2019. Now that I am over six months out from my last radiation treatment it is time to finally have a mammogram done to make sure that cancer has not come back. My surgeon explained that we couldn’t have a mammogram done any sooner than now because the radiation causes the images to look cloudy. So, next Monday I will have the mammogram done that my surgeon ordered back in February. I am scared, to say the least, but I am trying to have faith that all of the chemo and radiation treatments killed any tiny cancer cells that may have been too small to detect after my first surgery.
Ask an Expert: Breast cancer growth rate
From the expert staff of breast cancer research at the Robert W. Franz Cancer Research Center at Providence Portland Medical Center:
Like a lot of cancers, breast cancer grows by simple cell division. It begins as one malignant cell, which then divides and becomes two bad cells, which divide again and become four bad cells, and so on. Breast cancer has to divide 30 times before it can be felt. Up to the 28th cell division, neither you nor your doctor can detect it by hand.
With most breast cancers, each division takes one to two months, so by the time you can feel a cancerous lump, cancer has been in your body for two to five years. It can certainly seem like a lump appeared out of nowhere – especially if you or your doctor have recently examined your breasts and not felt anything suspicious – but in reality, cancer has simply doubled that one last time necessary to be noticeable. By the time you can feel it, a breast tumor is usually a little more than one-half inch in size – about a third the size of a golf ball. It has also been in your body long enough to have had a chance to spread.
This sounds scary, but what it really underscores is the importance of regular mammograms. These screening tests can usually detect breast cancer when it’s about one-quarter inch in size or smaller – a year or more before it would be detectable by hand. Mammograms also make possible the early diagnosis of some pre-cancerous conditions and early-stage cancers that appear as tiny calcifications (microcalcifications) on mammography but aren’t detectable by physical examination.
It’s important to realize that there are two types of mammograms:
A screeningmammogram is performed in cases where there isn’t any known problem. This type of mammogram is used for annual exams.
A diagnostic mammogram is performed when there is a known problem that requires careful evaluation. Diagnostic mammograms provide much more extensive images than screening mammograms, such as views from additional angles and compression, or blow-up, views. Often an ultrasound will be done in addition to the mammogram if there is a palpable lump. Make sure you receive a diagnostic mammogram if you’ve found a lump.
Once a breast cancer gets big, every doubling is significant. If you find a lump, see your doctor as soon as possible. Don’t settle for just a mammogram if the mammogram doesn’t find anything. The next step should be a screening ultrasound, and if those results are indeterminate you need to get a biopsy. Ask your doctor for these tests if he or she doesn’t schedule them.
Very helpful information…Once a cancer patient is in recovery most people think that the worst is over, and it is as far as treatments and surgeries are concerned. But recovery involves not only dealing with and healing from the physical effects, but the mental effects as well. As the first sentence of this article states, “Even if your person appears strong on the outside, understand that their mind and body are still recovering from a trauma.” Breast cancer and what a patient has to endure to survive it, is indeed a trauma, so it is very important that their support system is there for them more than ever when moving into the recovery phase.
Recovery from cancer is not easy, it takes time to navigate through all of the experiences and emotions that come up during what seems like endless chemotherapy and radiation treatments, blood draws, scans and surgeries. Coming to terms with the damage that everything I have been through has done to my body and mind is overwhelming at times. Every time I look in the mirror it is impossible to ignore my slowly growing hair, the scars on my breasts and the discolored skin under my left arm, from radiation treatments. I know that as time passes my hair will grow back and the scars and discoloration will fade, and maybe as I see those changes then I will feel like I am moving through my recovery instead of feeling like I do now, impatient and stuck.
I have to say that with Covid-19 limiting socialization and disrupting life as we know it, there is a stress that normally wouldn’t be an issue. I would be working on getting back to a normal life, life before breast cancer, and I am, but I am also dealing with the isolation and depression that the virus has brought to most of us at one time or another in the last few months. Normally, I would still be working at my job, and not laid off, which really helps keep me focused in all aspects of my life. I would also be making plans to spend much needed time with friends and family as I miss them terribly and being around them would help my recovery in so many ways.So in the meantime as I wait to find out when I will be going back to work and we finally get to a time when it is safe to get together again with those that we love; I am doing what I can each day to get through these uncertain times as best as I can.
Even if your person appears strong on the outside, understand that their mind and body are still recovering from a trauma.
If you’ve ever lost a loved one, you may remember what it felt like immediately after your loss: friends checking in on you, bringing you food, and generally showing up for you. But as weeks fade into months and months into years, those check ins drop off — or disappear altogether.
This feeling is all too familiar to some breast cancer survivors who may suddenly feel alone as they struggle to adjust to their new normal.
Do you want to be there for your friend but have no idea where to start? We talked to mental health experts who work with cancer survivors to get the scoop on how you can continue to show up.
“Loved ones should understand that a great deal of loss has occurred for the survivor,” says Renee Exelbert, PhD, CFT, a psycho-oncologist and breast cancer survivor.
This includes loss of safety in their body, loss of safety in the world, and sometimes, the loss of physical body parts, or the loss of prior functioning, she explains.
With that loss comes relearning how to relate in the world.
Even if your person appears strong on the outside, “understand that their mind and body are still recovering from a trauma,” says Gabriela Gutierrez, LMFT, clinical oncology therapist at Loma Linda University Cancer Center.
The physical loss associated with breast cancer can lead to a kind of identity rebuilding, she says.
“Women are learning how to still see themselves as women even after their breasts have been altered or removed all together,” Gutierrez says.
You may be wondering why your friend isn’t being more celebratory. After all, they just got a clean bill of health and survived cancer.
Unfortunately, it’s not that simple.
According to the Cleveland Clinic, up to 50 percent of breast cancer survivors worry their cancer will come back.
“This fear of recurrence is a very common phenomenon that patients face as their bodies learn how to adjust back into the ‘normal world’ and as their bodies process the physical and emotional trauma they just endured.”
More than anything, your person just needs to know that you’ll continue to be there for them.
“Remind them to be patient with themselves, and to have compassion for themselves,” says Gutierrez. “Remind them it is OK to bring up hard conversations with you, so long as you feel like you are a safe person to do so with.”
They may be afraid to bring up these heavy emotions with you, and they need to know they’re not a burden to you.
You’ve been running with your friend for 10 years, and now that she’s healthy again you’re wondering why she’s not interested in running.
When someone has gone through a traumatic experience like an illness, perspectives and priorities will shift. Understand that it’s not personal.
“Loved ones need to be aware that the survivor may not place the same value or importance on previously shared values, relationships, or stressors,” says Exelbert. “What was at one time significant to the survivor, may no longer carry relevance at all.”
When I was first diagnosed with breast cancer it was unimaginably overwhelming in so many ways. My head was spinning with questions and fears and like many newly diagnosed patients, I felt like I needed to quickly learn a new language. Little by little I began to understand my diagnosis and what it meant for me as a breast cancer patient. Now, 16 months later, I have come across all of these terms either through my own experiences, discussions with my doctors or by reading the endless sources of information that I have discovered along the way. In the beginning of my journey it would have been so helpful to have all of the information below in one place for me to reference. I hope by sharing this article I am able to help answer some of the questions you might have as a breast cancer patient or a caregiver to a breast cancer patient.
At the bottom of this article, Monica suggests writing your cancer story basics using this guide. I am finding that quite often people will ask me for this information whether it is in a new forum that I have joined or during a conversation I am having with someone new. I have included my cancer story basics here in this blog post and on my “About Me” page.
My Cancer Story Basics: I was Dx at age 51 w/ ER/PR+, HER2-, IDC. I have had ACT, Rads, and I am on a 10 yr plan w/ HT, Anastrozole. My cancerversary is the date of Dx on February 25th, 2019. I have had a partial mastectomy, port-a-cath insertion, reconstruction w/reduction mammoplasty and insertion of breast prosthesis following reconstruction.
The author of this article,Monica Haro, is the community guide for the breast cancer support app BC Healthline. This particular app has been an amazing source of support for me both while I was in the middle of fighting breast cancer and also now that I am learning to live life as a survivor.
I struggle with getting exercise into my daily routine not because I am too busy, but because I am still dealing with fatigue from over a year of fighting breast cancer. Everything about my journey has been exhausting both physically and mentally. Luckily I am on the other side of treatments and endless doctors appointments so my energy level is slowly improving. Most days I try to get some form of activity in, even if it is just cleaning part of the house or playingwith my dog….it all counts and I make sure to remind myself of that.
Written by Matt Berger on October 20, 2019
A panel of experts has released guidelines stating that regular exercise can help prevent cancer as well as help people undergoing cancer treatment.
The experts recommend 30 minutes of aerobic exercise 3 times a week and strength training 2 to 3 times a week.
Experts say exercise can help prevent cancer by reducing inflammation, keeping weight under control, and boosting the immune system.
Kathryn Schmitz is seeking a paradigm shift.
Schmitz, a professor of public health specializing in cancer at Penn State University, thinks the perception of the ties between exercise and cancer is where the perception of the ties between exercise and heart health was decades ago.
Back then, she said, getting a patient out of bed and moving after a heart attack would be criticized. Today, the benefits of exercise to heart health and recovery are well known.
A similar consensus is emerging in the way the medical field thinks about cancer.
The latest sign in that shift came this week, with the publication of new guidelines that recommend physicians “prescribe” exercise in efforts to reduce the risk of certain cancers and improve the treatment outcomes and quality of life of those with the disease.
“Today if you asked someone with a dad with colon cancer if he should be exercising they’d probably either say no or they don’t know,” Schmitz told Healthline.
Schmitz co-chaired the roundtable — which included experts from the American College of Sports Medicine, the American Cancer Society, and 15 other groups — that put together the new guidance.
The gist of the guidance, published inthreepapers this week, is that exercise can contribute to the prevention of bladder, breast, colon, esophagus, kidney, stomach, and uterine cancer.
The guidelines also state exercise can help improve survival rates for people with breast, colon, and prostate cancer — as well as the quality of life of those people in terms of reducing side effects of cancer treatment.
Schmitz says getting more tailored recommendations for cancer prevention is one of the remaining open questions that ongoing research hopes to help answer.
“We don’t know the exact, optimal dose of exercise needed for cancer prevention,” Alpa Patel, the American Cancer Society’s senior scientific director for epidemiology research, told Healthline. “But we know from the evidence to date that the more you do the better.”
Patel, lead author of the paper that covered the prevention aspects of the new guidance, said how exactly exercise affects cancer prevention is severalfold.
That includes exercise’s effects on reducing inflammation, helping regulate blood sugar and sex hormones, and improving metabolism and immune function.
“Depending on the specific cancer, one or more of those mechanisms may be more important than the others,” he said. “So, for breast cancer, the benefits of exercise are really driven through the impact on sex hormones.”
“It can also affect cancer development or risk through reducing obesity, a risk factor for many cancers,” said Dr. Crystal Denlinger, an oncologist at the Fox Chase Cancer Center in Philadelphia and chair of the National Comprehensive Cancer Network’s panel on survivorship guidelines.
She told Healthline that the exact reasons why exercise affects certain cancers in different ways still needs additional research.
The current recommendations do vary a bit based on personal history, Denlinger noted. But, she said, “at this time, there is no one ‘best’ exercise — anything that gets you moving and active is good.”
She said further trials are under way to evaluate how and when exercise can affect cancer treatment.
The effort underway for Schmitz — through an initiative she started at the American College of Sports Medicine — is pushing to get oncologists to assess and advise cancer patients’ physical activity.
“This is an easy, cheap way to give patients less fatigue and a better quality of life,” she said.