Experiences

Drains & Chemo Plan

May 3rd, 2019

Mood: Normal 😌

Today was a good day….I went to my surgeons office and had the 2nd drain and stitches removed….yay!! I am healing well and I will have another follow up appointment soon. I will also go back to my surgeon to have him put my port in for chemo.

I also went to see my oncologist and he gave me my plan for chemo. I will start chemo on May 23rd, the day after our 15th wedding anniversary. I will have 2 drugs for 4 treatments every other week for 2 months and then 1 drug for 12 treatments once a week for 12 weeks. My last treatment will be on October 3rd, with my reconstruction surgery sometime soon after that.

So why so much chemo?? Because the 18 lymph nodes that were removed during my surgery were all cancer, so there is a concern that I most likely do have tiny microscopic cancer cells in other locations in my body that are too small to show up on an ultrasound. It is not worth taking the chance to leave anything behind so I am going to have the most aggressive treatment and I am fine with that….I trust my doctors to get me past this.

My oncologist said that I shouldn’t have any problems with this treatment plan other than not feeling well at the beginning for several days after, but it is a double dose of drugs and that is why I will only go in every other week for that portion of treatment. He also said that the anti-nausea meds have come a long way in the last few years so my discomfort should be minimal especially with them giving me a dose of them when I go in for treatment as well as having a prescription at home.

At some point during my chemo treatment I will meet with my radiologist to go over the plan for my radiation treatment which will be after my reconstruction surgery.

Whew…..still a long road that could even keep us in GA for Christmas but we are all excited about the plan and Matt and I are very pleased with my doctors.

Experiences

Rough Day

April 27th, 2019

Mood: Exhausted 😴

Today was a bit rough. I have been nauseous on and off. I have been a little irritable, mainly because I am tired of the bandages and drains. Matt has been wonderful with emptying my drains and recording the amount of icky, that’s a medical term you know…🤣, that has collected so we can give that information to my surgeon on Monday. I am barely collecting anything in the drains now, so I am hoping my bandages will get much smaller and the drains will be removed when we see him.

I am still going to sleep at random times even though I have substantially reduced the amount of painkillers I am taking. Besides a few moments of dozing off, today I took a long nap, almost 2 hours and I was shocked when I woke up at almost 9pm.

I have received a few messages from people that want me to call them back. Please give me time as I am resting and sleeping as much as I can and a phone conversation can wear me out. I am updating on here as I can….Love you all! 💕

Experiences

Post Surgery

April 23rd, 2019

Mood: Exhausted 😴

My surgeon was very pleased. I did very well and he got all of the cancer out. There is a pathologist in the operation room who tests the tumors and tissue so he can tell the surgeon if he got all of the cancer out.

They had a hard time waking me up but once I was awake I was really nauseous and my mouth was really dry. They had to keep giving me insulin to help regulate my blood sugar and to get my blood pressure and heart rate back to normal. Once I was in recovery I continued to have issues with being nauseous and disoriented. They almost admitted me for the night but they finally found a anti-nausea medicine that worked.

Today I am on pain meds and I have been sleeping on and off all day. Every time I sleep and wake up I have a headache and pain from the surgery sites. I also have 2 drains in that Matt empties and writes down the amount of blood/gunk that we collect each time. I ended up with a partial mastectomy but he cut in such a way that he will have a better plan in place for reconstruction surgery after chemo.

Experiences

Marking Appointment

April 22nd, 2019

Mood: Indifferent 😕

We went to see Dr. Schwartz this morning for my marking appointment. He re-measured and marked where he will be cutting to take out the tumors tomorrow, as well as where he will place stitches to mark where he will cut during my reconstructive surgery.

I was very surprised when he mentioned possibly being able to do reconstruction when he takes the tumors out. There are no promises but it would be great if he could!

I am scared but surprisingly calm tonight. Dr. Schwartz really put me at ease during my appointment today.

I will update as soon as I can.

Feelings

Dropping the Ball

April 16th, 2019

Mood: Stressed 😟

As if the last few days had not been stressful enough….

My surgery has been rescheduled to next Tuesday the 23rd. I don’t feel like going through all of the ridiculousness but basically someone was supposed to call me way before today to go over the medications that I currently take, with me.

It turns out that I am supposed to stop taking one of my medications 5 days before surgery. If I stopped today, I only would have been off of it for 3 days before my original surgery date….so yeah….I am disappointed that someone dropped the ball. I just want this surgery over with! 😔

Feelings

PET Scan & MRI Results

April 5th, 2019

Mood: Relived 😌

I have wonderful news! My PET Scan & MRI came back clear of any additional cancer! My diagnosis is still serious, but at least we know now that I do not have any sign of metastatic disease. I will still have to go through chemo after my surgery on April 18th. My oncologist said that it is best to continue with our plan for chemo treatment because I am so young and healthy. The chemo, along with radiation which will be after my second surgery, and the medication for 10 years, will give me the best odds of the cancer not returning in the future.

We will know more after my first surgery, when the pathology comes back from the tumors that are being removed. Once those results are in I will be going back to see my oncologist on May 3rd to discuss chemo drugs and length of treatment.

Feelings

Surgery Date

April 2nd, 2019

Mood: Anxious 🙄

CT scan yesterday….MRI tomorrow….I should have all of the results back by this Friday. Crossing my fingers that they are both clear other than the cancer we already know about.

Good news! My surgery has finally been scheduled for Thursday, April 18th. I have never had major surgery in my life so I am terrified, but anxious to get it over with.

Experiences

Oncologist & Surgery

March 25th, 2019

Mood: Hopeful 🙂

My Oncologist ordered a PET scan & MRI after we met with him last Friday. I will have both scans next week. My doctors need to see if there is any additional cancer in my body and brain. I am not having any symptoms that there is, but the results may dictate my treatment. He is basically saying right now that having chemo after surgery will be best to make sure that it is all gone.

The biopsy results came back, I was right, more cancer in my breast. My surgeon went over the plan for my surgery with Matt and I today. Luckily, the tumor that was biopsied last week is in a position that will make it so he will not have to change his plan for my surgery, other than removing a larger area. He also agreed with my oncologist that chemo would be best after surgery. Once my chemo is done he will do my reconstruction surgery, then radiation after that.

Such a long road….but necessary to give me the best chance of becoming and staying cancer free.

Experiences

Biopsy

February 26th, 2019

Mood: Worried 😥

The biopsy was uncomfortable and at times painful, but Dr. Schwartz told me everything that he was doing step by step. He had a mini ultrasound machine that he used himself, not his assistant.

As he was working to find each mass he told me that I have 3 masses, 1 in my breast and 2 in my lymph nodes. He is very concerned with one of the masses that is in one of my lymph nodes and he had a hard time getting to it.

Once he was done with the biopsy he looked at Matt and I and said, “this is cancer”. I was once again stunned even though he said what I already knew, but now I am hearing the C word and things were getting so serious very quickly. The biopsy results will tell us what type and stage.

Now he is talking about surgery and chemotherapy. Chemotherapy before surgery, but still not sure without the results in hand. The results will be back by Thursday of this week.